Skye's VBT Surgery @ Simmerath, Germany - March 12th 2018

Her story prior to surgery is here.  

You never know what's around the corner


Well, as I sit in Singapore Airport writing this, I thought of this image. When we started on this journey nearly five years ago, who would ever have known where it would take us. From meeting beautiful families, life saving open heart surgery to travelling the world trying desperately to find an answer.

Today I feel that I am just putting one foot in front of the other, taking one day at a time and going gently. Saying goodbye to Lili & Phoebe (and Lydia; my niece) for what will be five weeks was the weirdest sensation, knowing that upon our return we will of achieved the unachievable, we will have climbed our mountain. But the mountain will not have been conquered - it will always be a constant waiting game to ensure that the dreaded curves remain stable.

My admiration goes out to all those families fighting to make a difference, striving for the best for their kids, and going beyond the realms of possibility to make things better, not necessarily for themselves but for those who will follow in their footsteps. We are following in someone's footsteps - the bravest lady I've ever met, they've gone through absolute heartbreak and their journey is nearing completion also; albeit a different path. If it wasn't for them, we wouldn't have had the fight that we've had, and the spirit to keep going.

But this spirit is going to keep going, all the way to Simmerath in Germany :-), where an amazing surgeon will take my beautiful girl and fix her, of that I have no doubt. It's going to be a long long road to recovery and one that we need to be respectful of, but we'll get there, we've come too far, and upon our return we will treat the naysayers with respect whilst holding our heads high knowing we did all we could.

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