The night before the big day

Well, this was a day I have only dreamt about.

I don't think Skye or I have ever been so scared, even through all the hurdles that she has endured. It truly does look like Skye is having her operation tomorrow morning first thing (7am CET time) - we came into hospital at 1pm and she had her bloods, blood pressure and temperature taken. The final call will come at 6am tomorrow morning, but at the moment all is looking likely.

Skye is in pieces, I've never seen her like this - she wants her Whanau around her, and we are so very far from home and completely outside our comfort zone.

Her lovely Uncle; my brother Graham, has been with us the past two nights from England, and his leaving today made Skye fall apart - she desperately wanted him to stay but couldn't find the words at the time - she has been so brave, but her reserves are now bare - poor darling.

I know that this is what we have been fighting for, our whole world has worked to get us here, to this place, at this time, but now it seems too big a mountain to climb. I keep reminding Skye that there are people out there willing us to do this, willing us to make this work, willing her to be better and be her beautiful carefree self once more.

To everyone who has helped us on this arduous journey; from the beautiful brave families, to our special friends; Iris, Kirstie & Larry who have pushed, prodded and coaxed her, to the never ending support of our loved ones - thank you. As terrified as I am, thank you from the bottom of my heart, we wouldn't be here today if it wasn't for you all.